Mood:  sad

In September 2005 my health was deteriorating after many months of strange pains and doctors telling me I was imagining things. In the second week of the school holidays I visited a different Doc for a different opinion as I was desperately weak. After chatting with the doctor and explaining all my symptons, including that i had lost 10kg in 6 days, which sent me into a depressed and stressed state, the doctor hospitalised me and within 48 hours the 1st spasm attack occured, much like an epileptic seisure, and really scared me and the nurse pressent. My blood pressure went from constantly low to dangerously high. I was sent to another hospital a few days later for further tests. They also sent me to another hospital again for further testing, the whole time not telling me anything. And yup, you guessed it, i was moved to another hospital and, yup, more tests. Finally i was to get answers. After another three days of tests i was informed i have RSD. In a way i was relieved as i had a name for my problems but stressed out as i did not know anything about this disease and nobody could help me with any information. That was when we went online and started searching for answers, finally we knew more about it but every where we looked we found "NO CURE" this was even more stressing for me and my young family. At least now we know alot more about the disease and we understand that the weather, some food, ice, magnetics, etc all effect me.

I have created this site to be able to chat with other sufferers and my family and friends, to be able to give support to others and hopefully find answers to many questions that we all have. So please feel free to post an entry, ask a question, follow one of the links or just leave a hello if you like, you are welcome anytime.

RSD Song
RSD a Mystery

No one knows the pain I feel
No one knows, it seems unreal
Sometimes I hope, I want to believe
That life goes on without disease

Oh, not so very long ago
I hurt my leg and did not know
Until my body refused to mend
And turned instead to the hell I'm in

(Chorus)

RSD - that dystophy
Can change your life, oh it did for me
Let's find a cure, so we'll be free
From RSD, RSD

Skin will swell, appearing tight
And blister sores, some hide with fright
Five million souls and more feel pain
Like pokers hot, you go insane.

(Chorus)

RSD - that dystophy
Can change your life, oh it did for me
Let's find a cure, so we'll be free
From RSD, RSD

(Bridge)

I want a hug, but please stay away
I want you close but it hurts that way
Tender moments are what I miss
But RSD's robbed me of this

Many colors have adorned my skin
When breezes blow, I hide within
But if I stay focused on what is right
I beat depression; I win this fight

(Chorus)

Oh RSD - that dystophy
Can change your life, oh it did for me
Let's find a cure, so we'll be free
From RSD, RSD

I wonder why this was meant to be
Was I put here so I could speak?
Oh, put yourself inside my shoes
Let's work to find insightful news

(Final Chorus)

Yes, RSD's a mystery
But I'm not looking for sympathy
Let's set our sites, yes, you and me
Let's find that cure for RSD

(repeat)

Yes, we'll have the cure for RSD!

Links

Is this a possible cure

RSD HOPE facts

RSD Chat USA

www.accessibility.com.au

Paula Abdul's RSD story

Better Health

International Research Foundation RSD /CRPS