Hello and Welcome
I don't really know what I'm doing here, so please be patient. What I do know is why I'm here, to promote public awarness and understanding of a deadly genetic brain disorder.
This disease has changed my life and the life of my family and other families forever. This disease that can create so much sorrow and heartache, is known as Huntington Disease (HD). As of right now there is no cure for HD scientist and researchers are fighting for a cure. A cure that will hopefully make this the last generation that has to suffer. I feel that with everyone pulling together for the cause, the cure will be found and the dragon will be stopped.
I'd like to tell you a little bit about myself and family. As you may have guessed my name is Brenda. I'm an area rep for the Chatham-Kent Area of the Huntington Society of Canada, along with my brother-in-law David. The Support Group that we formed started Feburary of 2000.
I'm married to a wonderful man, a man who came into my life when I
needed him most. He brought laughter, compassion and stability to my
family. He brought us together again as a whole family, but most of all
"love." Does this sound like I'm bragging?
I'm not (well maybe a little). This man is one of the main men in my
life and his name is Vaughn.
The other main men in my life are my sons.
These boys and the little ones below are our reasons to help in the fight against HD. Our little men, Our Grandsons!
They are gramma and grampa's pride and joy.
I had better not forget the girls, in our family. The girls that came into our lives, with the knowledge that HD lives here. They are very supportive and understanding of the cause, and I'm proud to say that they are our daughter-in-laws.
Families wouldn't be complete with out some little four legged creatures running around, and we have a few.
When I first started this site we had two other cats in our family. I took them off the page as they are no longer with us, but they had such an impact on our lives that I had to put them back, their memory will always be with us.
My husband Vaughn and I live about 5 miles east of Chatham Ontario, on a quiet country road, with our little animals. Its usually pretty quiet here till all the family gets together and then watch out. But to have these family gatherings, means the world to us. With Huntingtons in the family, you never know what lies around the corner, you take one day at a time and enjoy it.
I would like to thank Lloyd Skeoch for all that he has done, to get my web site on its way. If it wasn't for Lloyd and all his patience and time, I would never have been able to do this. Lloyd is caregiver, for his lovely wife Joan, who was diagnosed with Huntingtons.
We will fight to the end!!