I had a partial pancreatectomy with islet cell transplant on June 11, 2007. It was supposed to be a TOTAL pancreatectomy but when the docs got in there, they thought that the head of my pancreas "appeared" healthy so they left it in, with hopes that would prevent diabetes. They knew that it was a possibility that the head of my pancreas had "microscopic chronic pancreatitis" and that I could possibly need a completion surgery, but said there was a 15% chance of that happening. Of course anything rare will happen to me! About 2 months after surgery all the pain came rushing back. I had been doing wonderfully, and was able to reduce my narcotic usage greatly. But had to go back on them to treat this pain.
Now I am scheduled to have a completion pancreatectomy and another islet cell transplant on February 11, 2008. Luckily this time it seems my insurance will actually pay for most of it. Hopefully after this surgery it will truly be the end of this and I can have my life back.
Please pray for a great outcome for this next surgery and a speedy recovery, and LESS PAIN!! Also please send prayers for my daugher Megan, who will be without mommy for another 3-4 weeks b/c of having this surgery again. That is the hardest part of this for me. I really don't want to leave her again. It was so hard on her the first time. But hopefully after this, I won't have any more long hospitalizations or ANY hospitalizations where she will be missing her mommy!
Support My surgery
A timeline of my illness
What is a pancreas anyways?
6217 Beverly Ave NE
Canton, Ohio 44721
Phone is (330)316-2681
The above site takes you to a great message board that has been a huge source of support to me over the past 3 years. There are some great people on there, and they are all struggling with the same illness as I. Some have been dealing with the effects of Chronic Pancreatitis for more than 10, 20, even 30 years. I am lucky that I have found Dr. Sutherland early in my disease, and because of that am a good candidate for this life altering surgery. Since we are doing this early, I have a good chance of not becoming diabetic.