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CREUTZFELDT-JAKOB DISEASE EXPLAINED

by Debbie Oney
September 28, 1998


Children can be affected by Creutzfeldt-Jakob Disease ("CJD"). They may have received blood products which were withdrawn from the market due to possible CJD risk and their parents may have received withdrawal notifications. Or they may lose family members to the disease. Student-athletes need to be warned about the dangers of black market cadaver-derived growth hormones which put them at risk for CJD.

CJD is an infectious, rapidly progressive fatal brain-deteriorating disease. One strain, nvCJD, is linked to Mad Cow Disease in England. We have classical CJD in the United States and throughout the world. In one Yale University study of Alzheimer patients, 13% -- when autopsied -- were found to be have CJD. The cause of most cases of CJD is unknown. The incubation period can be decades.

CJD should be considered whenever a person develops a rapid dementia and involuntary, irregular jerking movements. Initial symptoms are often psychological, visual and coordination problems. The person usually dies within a year of showing symptoms.

It is not known if CJD is spread to humans by blood. The infectious agent has been found in blood, but there have been no documented cases of people getting CJD through blood products. Blood products are present in many vaccines such as the measles-mumps-rubella and allergy vaccines, in In Vitro Fertilization cultures, and in medical test fluids. As a precaution, blood relatives of CJD victims and people who are at risk for CJD due to past medical procedures should not donate blood. The Centers for Disease Control is conducting a study to determine if CJD can be transmitted to humans by blood. Until September 1998, blood products were withdrawn from the market if a donar died of CJD or was at risk for the disease.

The CJD Voice website has a great deal of information on the disease. It is located at http://members.aol.com/larmstr853/cjdvoice/cjdvoice.htm. CJD Voice is an e-mail discussion support group.

Blood Recall/Withdrawal - CJD is an e-mail group for people who have received blood recall/withdrawal notifications. The website is at http://members.aol.com/debbieoney/blood.htm.

Biographical Sketch: Debbie Oney has a Masters degree in Social Work, University of Illinois, Chicago, Illinois, 1974 MM (Master in Management) with specializations in Hospital and Health Service Management and in Finance, Kellogg Graduate School of Management, Northwestern University, Chicago, Illinois, 1981.

Debbie Oney writes the above article in the following capacity: as Director of Public Awareness, CJD Voice Discussion/Support Group Cofounder, Blood Recall/Withdrawal - CJD Discussion/Support Group.



KIDS AND VIOLENCE

September 7, 1997

First of all, let me list the rating codes for television programming:

TVY for all children
TVY7 for older children
TVG and TVPG for general audiences, and
TV14 and TVMA for adults


There is also a new set of content descriptors that alert viewers to sex, violence and crude or course language and dialogue: S, V, L and D. These descriptors, used along with the V-chip (a television filtering system that will be available on televisions in the next year or so, and as separate attachments even sooner) will help parents screen out violent programming from their youngsters' viewing abilities.

In my June 1998 issue of the American Psychological Association Monitor I found an article that describes one piece of research about TV violence and how it affects children. This research analyzed some 9,000 hours of TV programs (shown between the hours of 6 a.m. and 11 p.m. over 23 channels, including broadcast networks, independent broadcasters, public broadcasters and basic and premium cable channels). Here are some of the findings:

"Good" characters or heroes -- supposedly attractive role models that children often mimic -- commit nearly 40 percent of the violent acts.

More than one-third of the programs featured bad characters who weren't punished and their physical aggression was condoned.

More than 70 percent of the aggressors showed no remorse for their violence and they weren't criticized or penalized for their violent behavior.

Roughly half of TV violence shows no physical injury nor shows pain and suffering. The programs seldom show any long-term suffering of the victim and the negative impact on the family and community.

The research was co-directed by psychologist Edward Donnerstein, PhD. He is the Dean of Social Sciences at the University of California -- Santa Barbara. He was joined by researchers at the Universities of California - Santa Barbara, Texas - Austin, North Carolina - Chapel Hill and Wisconsin - Madison.

The researchers' main concern is that aggressors in TV programs often use violence to handle problems. They aren't punished and their victims appear unharmed. We already know that this blend teaches aggression to children. Unless our youngsters see the impact immediately after the violent act, they don't understand the consequences.

Another psychologist, Dale Kunkel, PhD, a senior researcher on the study and associate professor in the department of communications at Santa Barbara, says that shows need to present violence as unattractive and repulsive. Shows need to make aggressors outcasts -- not heroes.

I believe that parents need to know what their children are watching. Some of these programs are just plain ugly and children have no business watching them!

We may be a long way from developing a fool-proof rating system and a mechanism that locks out violent programming, but parents still have the right to set limits on what their children can and can't watch. Setting those limits may also include taking television sets out of children's bedrooms.

Email: rein@starnetinc.com