 Our son Ken, was diagnosed in June 2000 with a kidney disease called Nepronophthisis . During the first visit we learned that Nephronophthisis is inherited and is very rare. There are many, many pages on kidney failure and end stage renal problems in general but not many on this particular condition. For this reason this web page has been created. We wish to share what information we have been able to get, from medical journals, newspaper articles, medical professionals and from our own experiences. Our hope is that you will be able to benefit from it.
Total Trips to Calgary to date is 42
Do you have more energy after donating a kidney?
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