Hi, My name's Angie and I have Fibromyalgia. I
just found out June,1999. I am only 20, as of Oct.10th. The Doctors have been
trying to figure out what's wrong with me for over a year now. My health problems
seemed to get a lot worse when I got Mono. when I was 13. My mom was the
first to think I might have Fibromyalgia, my mom is a nurse. My mom
was injured at work and sent to a pain control clinc in Vancouver B.C. Canada.
While my mom was there the specialist there believed that her injury
at work may have triggered her Fibromyalgia, but they never followed
up on it. During this same time I was home in Victoria B.C. and
more and more having pain issues of my own. My mom would call
me from the pain control clinc and she would talk to the nurses
and doctors there about me. One nice doctor took particular interest
in what my mom was saying about me so the next thing I knew, as
soon as my mom got back, I was being tested for all sorts of things and
trying all sorts of alternative treatments. Right now I am receiving Vitamin
B12 and B1 shots. They have been boosting my motivation energy, I mean sure I have
the pain and discomfort but I feel better emotionally and mentally since I
started to get the shots... I mean sure it's not a pain and discomfort
cure but man to go each day with that little extra bounce in my step and
more vibrince in my mind it's worth the shots. *smile* It's a start.
I still stuggle with discomfort, pain, commonly have trouble sleeping, and
sure I still get my "Fibro-Fog" moments but, I keep up my smile. I hope my
page helps bring you a smile to.
The "F" Words People with Fibromyalgia have their
own language and dictionary. Of course the dictionary contains
mostly section F. I call them The "F" Words! This fibropedia
is a collection of sniglets, words that should have been words,
as created and defined by people who participate in the discussion
of fibromyaliga on alt.med.fibromyalgia And The "F"
Words Are:
Brain Fog:
the brain is clouded, so everything around you is hazy and it
is difficult to think clearly, and function 'normally.'
Catatecary:
which means feeling like the cat that ate the canary. As in,
I'm feeling very catatecary today.
Clambrain:
similar to brainfog; brain is operating at about 5% capacity.
CNP:
a Chronically Normal Person.
Doctor Fatigue: exhaustion from seeing to many M.D.s whose
dx is IAIYH (It's All In Your Head).
Fibro-Bugs:
the feeling that bugs are crawling on your skin.
FibroCrud:
a catch all term that describes all of the symptoms that someone
with fibromyalgia experiences.
Fibro-Dance: walking
along with no problems, and suddenly then one begins staggering,
losing balance (also known as fibrostep and the fibrowaltz fibrolurch
and fibrobump) This is called ataxic gait, and the staggering
walk is very common to people with fm/mps. Travell and Simons
say it is due to sternocleidomastoid trigger points.
Fibro-Dash:
the beeline we all make when the IBS or cystitis kicks (also
see toilet tag).
Fibro-Fellows:
Old-timers who can give advice and sustenance to us newbies.
Fibro-Fingers:
thought to be caused by brainfog - typos result from this, as
do missed or wrong notes while playing an instrument, we think
of the typos as brain stutters.
Fibro-Flakes:
for us only ...an affectionate term for us in our most exaggerated
states...use with permission and sensitivity only.
Fibro-Flipping: when you have to keep on checking and rechecking
several times to make sure that you have written a phone number
or any number sequence down correctly.
Fibro-Flux:
when we are going through shifts in perception, ie. from brain-fog
day to achy day due weather change or whatever.
Fibro-Giggle:
a funny anecdote related to fms.
Fibro-Hug:
a hug between two people with fms where they each wrap their
arms around the other and use the fingers of both hands to massage
the back of the other person.
Fibro-Kinks:
anything that doesn't operate as it should.
Fibro-Link:
filling in the missing parts of a conversation. - in the middle
of a conversation you say something thinking. that you said the
thought preceding it only to realize that the person you are
talking to has no idea what you are talkingabout. Just a little
bit of mind reading would be a good thing sometimes!
Fibro-Mail: All
electronic mail messages pertaining to FMS.
Fibro-Myopia:-
condition affecting all doctors, friends, relatives, employers,
and Social Security administrators who can't see beyond the fact
that PWFMS look so healthy. Additional definition for fibromyopia:
Any abnormality of the eye that seems unexplainable or odd to
your othalmologist or optometrist.
Fibro-Sex:
having to experiment with innumerable positions to find one that
is comfortable.
Fibro-Side:
"Why can't we all just get along"?--forgot who said
it. Hey, a multiple wellness disorder--it's my "FibroSide."
Fibro-Stains:
the little tea, coffee, juice etc marks on our clothing we get
from having weak, wobbly wrists.
Fibro-Tip:
a suggestions/tip from one fmser to another.
Hi fibro diet:
Anything that tastes good, has lots of salt and or sugar,alcohol,
tobacco,fat,cholesterol and sex(oops different list).
IAIYH:
"It's all in your head," doctor's cop-out when s/he
doesn't have the guts to say "I don't know."
IgNoSecond:
ig-no-second. It measures a length of time such as hour, minute,
or second. But an IGnosecond is the length of time between some
irretrievable action and the time you realize the consequences
of that action. (For example, the length of time between shutting
the car door and realizing that it is not only locked but that
your keys are in the ignition.)
Irritable Bowel Syndrome (ibs):- when
the bowel doesn't know whether it's coming or going, so it does
both. One moment you are constipated, and the next you are running
to the bathroom (see toilet tag).
Mush Mouth: swapping first letters
of two words, swapping word order, especially after learning
Latin where there isn't any word order, and then I do come up
with a few Freudian slips or double entendes that were not intended.
Obisivity:
That is something we would have known if we were not a fibro-fog.
PAN:
people alleged to be normal.
PWF (PWFM, PWFMS, FMSERS): people with fibromyalgia.
Sudden Clumsiness: The art of walking into objects or tripping
over object (dust motes?) even when you see them or are in a
brain fog.
Sudden Stupidness: talking with someone and totally forgetting
what you were saying; a dead stop of words and a lost look on
your face--"Uh, what was I saying"?
Tender Points:
are the sore spots of FMS, characteristic places where pressure
of 4 kgs. causes pain. To meet the strict criteria for diagnosis
you must have at least 11 out of 18 in specified locations in
addition to a complaint of aching all over.
Thingie:
what you call something when you can't remember its name. Thingie-do--see
thingie.
Toilet Tag:
when IBS is acting up, and one is constantly running to the bathroom.
Tongue Tripping: when one is having difficulties pronouncing
simple everyday words, and/or when one says a completely different
word that usually begins with the same letter, but isn't at all
what you intended to say... Or something comes out of your mouth
and immediately you wonder why on earth you said that?
Please Look at my Guest Book. If not to sign it, then to
to just look at it. It's beauiful, it's full of information, stories, smiles,
and most of all people who are also affected by Fibromyalgia that just what to
say a few words. I find it's nice to know there are people out there that can relate
and that I'm not alone, who knows maybe you will relate to one of them to.
I Thank each and everyone of you. *smile*
