"The Spina Bifida Association of Nova Scotia (SBANS), established in
1984, is a non-profit, charitable organization affiliated with the Spina
Bifida Association of Canada. The primary purpose of the Association is
to enhance the quality of life for all individuals born with Spina
Bifida and/or hydrocephalus, and that of their families."
"The Spina Bifida Web Ring is a collection of sites by and for anyone
with an interest in spina bifida and related conditions, including
hydrocephalus, lipomyelomeningocele, tethered cord syndrome,
syringomyelia, Arnold Chiari malformation, anencephaly, and spina bifida
occulta. The purpose of this web ring is to facilitate networking among
those who have or love someone with spina bifida and to raise awareness
of this disability."
"I am Hispanic born in Lima-Peru on September 11th., 1966, I was born
with Spina Bifida. I am the fifth of 6 brothers, lived in Lima until
1982 and move to Alexandria, VA. Now I live in Woodbridge, VA about 20
minutes from Washington, DC. All of my brothers and both of my parents
are here. On September 1st, 1995 I found out I was a diabetic. I am
also a very sweet person and now I have the blood test to prove it."
Although this is a personal page and not a Spina Bifida page per se,
Daniel's Spina Bifida section has some of the finest and most
comprehensive information on Spina Bifida I have seen on any
site.
A Spina Bifida page belonging to
John S. Sapyta. I included it
here because it has an excellent chat forum.
"Whitaker & Associates is a company that provides information and
resources for and about the disability industry to people with
disabilities and companies that need to reach the 46 million people with
disabilities nationwide. Our mission is to be the best disability
information provider & facilitator in the world by aligning our goals
with the thousands of organizations and associations nationwide, by
devoting our resources to gathering the best information available, by
developing new and innovative information/marketing vehicles and by
answering the information needs of everyone with a disability."
"The Community Organization Network links people in Nova Scotia with
disabilities and health challenges to resources and services that
promote active healthy independent living."
"People who use wheelchairs, walkers and other mobility aids are blocked
by steps at every entrance of a home. They’re stopped by inches from
fitting through the bathroom door in a friend or relative’s home.
Constructing homes without these barriers is inexpensive and easy. So
why is it still happening?? . . . Here you’ll find resources to change
the status quo."
"To be diagnosed as latex allergic is a frightening thing for most of
us, and this is compounded by our isolation from each other . . . By
joining our organization, you can help us gain the attention we need to
demand changes that may save lives. For information about membership in
the Canadian Latex Allergy Association, please contact us. All
identifying personal information will be kept strictly confidential."
Although Lisa does not have a latex allergy, persons with Spina Bifida
often develop one without warning. I keep this site just in case.
A continually updated site that links to disability resources around the
web.
"Bobby is a web-based public service offered by CAST that analyzes web
pages for their accessibility to people with disabilities as well as
their compatibility with various browsers. The analysis of
accessibility is based on the working draft of the W3C's WAI Page Author
guidelines with the Page Authoring Working Group's latest revisions.
All pages on your web site must meet these requirements in HTML 4.0 to
display the Bobby Approved icon." This site is Bobby
Approved!
Quickie Designs Inc: The world's leading designer of lightweight, high
performance wheelchairs. The site has full specifications and prices on
every model of wheelchair currently manufactured by Quickie as well as
info on the history of the company. I have this site here because my
fiancée Lisa Brewer's wheelchair is a
Quickie
LXI.
"Established in 1988, CHOICES was organized to meet the growing need for
services to assist developmentally disabled adults who have a desire to
become more self-reliant, self-fulfilled and independent . . . The
services that are provided teach and encourage independence and
individual dignity and promote wholeness of life for social and physical
well-being."
"Welcome to the Enable Magazine and the Web Site, The Official
Publication of the American Association of People with Disabilities AAPD
. . . Our editorial philosophy is that a disability does not define the
individual, rather, it is but one of the many unique characteristics the
person embodies. Every issue of Enable will feature articles aimed at
providing you with the latest information about affordable quality
living."
"This evidence review was constructed to support the development of
national clinical guidelines for the management of acute low back pain.
It has been written on behalf of a multi-professional team led by the
Royal College of General Practitioners and subjected to extensive
external scientific review." This site is here because Lisa has
considerable problems with back pain.
"In my travels on the Internet, I have found that information related to
the sport of wheelchair racing is rather sparse. After many hours of
searching, I created these pages which I hope that you will enjoy."
Lisa is not into wheelchair racing, but still I have found this site to
be an excellent source of information on all forms of mobility
equipment. We used this site to research wheelchair brands and models
to help Lisa find the best new chair for her.
"I've designed this discussion forum to encourage dialogue among those
of us with disabilties and those without about how to cope effectively
with being presumed different. This site gives you the opportunity to
share your thoughts about some important issues I believe we need to
talk about." I just happened to find this site while browsing, and I
thought Lisa and I might find it interesting.
"Our mission statement is as follows: To provide a form of support and
entertainment on a national basis to parents of children with special
needs." I put this site up as a reference for parents visiting this
web site, and also as a reference for when and if Lisa and I have
children of our own.
"A new kind of prescription glasses can end the pain of computer
eyestrain. This site will show you how." Lisa and I use computers a
lot, and I thought this site might be useful if we ever experience eye
trouble.
John A. Ardelli
43 Poushay Drive
Sydney, NS B1L 1B4
CANADA gelfling@auracom.com
(902) 562-6048
.
