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Aims of the Hidradenitis Suppurativa Support Group.
H.S.S.G is a small self help group which was formed in 1998 by Carolyn Corrin and combined with the C.F.H.R at the end of 1999, the year which it also became affiliated to HIDE International. As with HIDE International, the day to day running of the group and the maintenance of this web site is carried out by volunteer's who are sufferers themselves or family of sufferers. It is a TRUE charity everyone gives freely of their time and money to help others and spread the awareness of HS.
Since inception of H.S.S.G we have had numerous calls from sufferers who have HS for a long term and only now finding someone to talk to.
Our phone number is available anytime, however it may not always be possible to answer so PLEASE keep trying, there are also information packs sent out to anyone who requests them (free of charge within the UK). Sometimes this may take a while so please be patience - we are only a small group not a large organisation.
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To provide support for Hidradenitis Suppurativa sufferers and their families. |
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To promote higher awareness of Hidradenitis Suppurativa within the UK. | |
To help doctors understand the personal ramification's of Hidradenitis Suppurativa on the sufferer. | |
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To make Hidradenitis Suppurativa a 'recognised disability' by the UK government. | |
To help establish funding for research into the treatment and cure for Hidradenitis Suppurativa. |
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Aims of HIDE International.
"To develop, promote and facilitate the exchange of disease information for sufferers, medical professionals and the public. To provide a forum for sufferers to openly communicate and support each other. To advocate and encourage the advancement of disease research and treatments to find a cure for Hidradenitis Suppurativa."
H.I.D.E. International is a small, privately operated and maintained organization. All its members are sufferers of Hidradenitis Suppurativa who have volunteered their personal time and finances to operating and maintaining this web site, the Internet Support Group, and many other web sites which are affiliated with H.I.D.E. International. H.I.D.E. is the acronym for Hidradenitis Information Development and Exchange.
Since it first began back on June 17, 1997, H.I.D.E. International has grown to include members from 14 countries. We continue to grow as more sufferers join our international family. Our Internet Support Group currently has over 270 subscribed members. Our Internet web sites are now available in three (3) languages: Dutch, English and French.
Our strength, knowledge and personal abilities come from the diversity of the people in our organization. This disease can affect anyone from any walk of life. Our fight for effective treatments and a cure include all those who are afflicted. It is this strength of diversity in adversity that will one day find a cure that will rid all sufferers from the physical and emotional pain and suffering this disease can cause.
We continue to improve our knowledge and understanding of this disease by working with each other and sharing ideas, thoughts, opinions and personal experiences.
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